genetic data privacy

By Dave Muoio August 24, 2018
23andMe has emailed developers a warning that an API permitting use of anonymized customer datasets for third-party app development will be shut down in approximately two weeks, CNBC reports. While the raw data will remain available to clinical research partners such as GlaxoSmithKline, which invested $300 million this year to gain access to the genetic testing startup’s DNA database for drug...
By Dave Muoio August 1, 2018
A group of consumer genetic and personal genomic testing companies have released a set of best practices for handling consumers’ personal genetic data. Designed to ensure privacy and promote transparency, the guidelines include a requirement for separate express consent before a company can transfer genetic data to a third party, such as an insurer or employer. “Supporting strong and transparent...