July 12, 2019
Deep in the belly of the University of Helsinki, large metallic cylinders line a basement lab. While the setting is clinical, scientists have added a playful touch with snow-themed name tags on each of the vats. Still, the mission of the lab is serious — inside “snow queen” and “snow castle” lie genetic samples that could potentially help decode genetic variants responsible for disease.
May 6, 2019
The NIH’s All of Us Research Program celebrated its one-year anniversary today with new updates on enrollment progress, previews of its upcoming cloud-based data platform for health researchers and the public beta launch of an online tool for viewing aggregated, de-identified information about the program’s enrollees.
“I hoped [one year ago] that many would share this vision and help us achieve...
Photo by Christopher Huang.
October 18, 2018
The NIH’s All of Us Research Program launched in May with a daunting task ahead of it — collecting demographic, health, behavior and genomic data from a 1 million person cohort comprised of demographics often underrepresented in biomedical research.
Speaking this morning at the Connected Health Conference in Boston, Dr. Dara Richardson-Heron, All of Us’ chief engagement officer, said that the...
January 14, 2016
The FTC’s PrivacyCon, an all day event that included presentations and discussions from a number of privacy researchers, one presentation focused on the data privacy risks associated with direct to consumer genomic data services. Many of these risks apply to any consumer health data service.
Researchers Jan Charbonneau and Andelka Phillips, of the University of Tasmania and the University of...