PatientsLikeMe

By Laura Lovett June 27, 2019
On Monday, online patient support community PatientsLikeMe sent an email to its members announcing that it inked a deal with UnitedHealth Group, becoming part of the latter’s research branch.  While both companies were upbeat about the deal, the public’s reaction has been far from universally positive. Concerns around privacy and data sharing in particular began to surface on social media, as...
By Laura Lovett and Dave Muoio June 24, 2019
UnitedHealth Group has acquired online patient community portal PatientsLikeMe as of June 19, according to an announcement sent out via email to members of the latter's DigitalMe study this afternoon. The announcement explains that as part of the acquisition, the startup will now become part of UnitedHealth Group’s research arm that focuses on healthcare improvements and innovation.  “This...

PatientsLikeMe founder Jamie Heywood and iCorbonX founder Jun Wang pose together.

By Dave Muoio April 4, 2019
A Chinese firm holding the majority stake of PatientsLikeMe, an online network for information, support and study recruitment for chronic conditions, is facing pressure from a US federal committee to sell its shares of the company due to concerns of foreign investment and influence, according to a CNBC report citing anonymous insiders. iCarbonX, a health data and genomics company founded by...

Credit: FDA.gov

By Jonah Comstock August 23, 2018
Online patient community PatientsLikeMe, which connects patients with different symptoms and conditions and collects patients' voluntarily submitted data for research, has teamed up with the FDA on a research study that could point the way toward a new channel for patient-generated health data for the agency. The study was recently published in the Journal of Medical Internet Research. Right now...
By Heather Mack April 10, 2017
Online health network PatientsLikeMe is teaming up with rare disease-focused Shire Pharmaceuticals to develop digital communities and create research opportunities for people with highly specialized, often underserved conditions. Treatment and study of rare diseases is challenging for many reasons. For one, patient populations are small and spread out around the world, and many may not have...
By Heather Mack January 5, 2017
Online network PatientsLikeMe, which serves as an information, support and study recruitment source for people living with chronic conditions, has secured $100 million in new funding, largely from a new partnership with health data and genomics company iCarbonX. Existing investor Invus also contributed to the funding round, which is still open. “This partnership is very exciting, as it...
By Heather Mack November 17, 2016
Online network PatientsLikeMe, which offers information and support for people living with a chronic condition, is expanding the amount of patient-generated information it offers through Walgreens.com to enhance understanding of certain prescription medications and their effects. Walgreens started adding data from PatientsLikeMe last year, representing a first for both companies: PatientsLikeMe...
By Heather Mack July 11, 2016
PatientsLikeMe, a patient network platform wherein users can learn from others with the same condition, share experience and support, and track and manage health, appointed Marni Hall as its new senior vice president of research and policy. Hall comes from the FDA, where she was most recently the Director of Regulatory Science within the Office of Surveillance and Epidemiology for the...
By Jonah Comstock July 7, 2016
The National Institutes of Health announced a number of partners today who will receive a total of $55 million in grant money for 2016 to build the foundational structures of the White House's Precision Medicine Initiative (PMI). The PMI Cohort Program includes five companies that make up the Participant Technologies Center, which will be responsible for creating mobile apps to enroll, consent,...
By Aditi Pai March 31, 2016
Last year, The University of San Diego’s California Institute for Telecommunications and Information Technology's (Calit2) data sharing initiative, called Health Data Exploration (HDE), awarded a total of $200,000 to five projects that aim to use aggregated personal health data to advance research. Now, the five HDE projects have released results from their first year. Calit2, which received the...